Emily was a little tired from her trip home, but still managed to dress up as a black cat for Halloween. She wore her kitty costume to therapy and around the hospital on Monday. Emily is kind of “stuck” on dressing up as a cat. She’s been a black cat now for four years. Keep…

Emily enjoyed an overnight trip home Saturday night, Oct. 29. This was the first trip home she and mommy had made since arriving in Chapel Hill Oct. 1. She enjoyed sleeping in her own bed and seeing her pets and friends. She especially enjoyed going to our church’s Fall Festival on Sunday afternoon. We are…

Emily awoke Saturday morning, Oct. 8, with a headache.   After consulting with her physician on call, we took Emily to UNC’s pediatric emergency room.   It was decided that Emily’s steroid dosage was dropped too rapidly and the headache came as a side effect of that.   Emily’s overall condition has stabilized, according to…

Emily and her parents are adjusting to being the administrators of her many medications since leaving the hospital and coordinating her outpatient treatment needs.   Emily receives radiation treatments Monday through Friday at 1:00 p.m.   Mom administers Emily’s oral chemo to her at 5:00 p.m. seven days a week.   We have learned what…

Emily was admitted to New Hanover Regional Medical Center in Wilmington, NC, for symptoms of imbalance when walking, difficulty chewing and swallowing, slurred speech and persistent drooling.   Upon initial examination, the doctors decided to take a CT scan.   The scan identified a lesion in the pons area of Emily’s brainstem.   The decision…