WEEK 2 – Oct 8 – Oct 14 ,2005
Emily and her parents are adjusting to being the administrators of her many medications since leaving the hospital and coordinating her outpatient treatment needs. Emily receives radiation treatments Monday through Friday at 1:00 p.m. Mom administers Emily’s oral chemo to her at 5:00 p.m. seven days a week. We have learned what foods Emily likes best when mixing with medication. Chocolate pudding seems to be a favorite. Imagine that? Emily’s steroids, chemo meds and radiation treatments leave her feeling very fatigued. She tires easily and sleeps alot. Emily has received many nice gifts, but has not yet felt up to playing. She liked to watch movies to pass the time away. She and mommy spend alot of cuddling time, too. Her appetite is good, which is normal for Emily, but the steroids increase her hunger, also. Different civic groups bring dinner in each night to the RMH; however, Wednesday is McDonald’s night. McDonald’s restaurant brings in all you can eat goodies. Emily has bonded with a weekly visitor named Dewey. Dewey is a three-year-old Welch Corgi who is a Chapel Hill Service Dog. Dewey and Emily have a weekly Sunday night date from 7 to 8 p.m.